November 23, 2004

I haven't posted for ages because I have been having problems logging into the blogger, but I seem to have fixed that problem.

Anyway, since my last entry I have been keeping strictly to the gluten free diet and trying to eat healthy as well. I have taken up a fitness challenge at the local hospital and done a ten day detox. I have also discovered that I may be lactose intolerant.

From what I have been reading it is fairly common for people with coeliac disease to also be lactose intolerant. I still suffer from a little acid indigestion and wind so I am really sticking to eating foods that are totally gluten free and not eating dairy if I can.

I have to say that I feel so much better. (As far as my stomach goes anyway).

I take my own food with me wherever I go now so that if they do not have a gluten free alternative I can just eat my own. In Australia if they refuse to let me eat my own food they can get into a lot of trouble because they do not provide a suitable substitute.

Well that is all I have time for now. I will be more regular again now that I can get back in!!!!

Posted by Possum at 02:43 AM | Comments (0)

October 18, 2004

Well it has been an eventful little while for me.

I decided to risk my intestinal tract by dining out. Something that I try not to do too often as some people have not a clue what gluten is.

My hubby and I decided to go out to dinner and a movie, not a big deal you may think! We live in a small town so to do this we have to travel 75 kilometers. We went to a Mexican restaurant in Horsham which is our nearest large town and all was going well until.......................

We went into the restaurant, very nice and very busy. Our table was directly under the stairs so every time I stood up I hit my head on the underside of a step. When they finally came to take our order my hubby and I both just wanted to order an entree as we had had a late lunch, but we were informed that there was a minimum order for food on a Friday and Saturday night. So we ordered the entree and I made sure that it was gluten free. While our entree was being prepared we perused the menu some more and Kevin decided on a dessert while I opted for a main course. I had no idea what I was ordering so I just asked that it be gluten free. Our entree came and we asked if the other food could be ready soon as we wanted to go to the movies. Tthe waitress informed us that we should have told the waitress that took our entree order as we should have just had main so we could get out faster.

This probably doesn't sound too bad so fa,r but by now my blood was boiling so when my main course came I just started eating. I was half way through main when I looked at what I was eating and started to get suspicious. I asked the waitress what I was eating and she told me that it was seafood in a bechamel sauce. Lots of flour in that. I lost my appetite in a big hurry after that. We finally got to see the movie but half way through I had to rush out and be sick.

Needless to say I have been paying for it since. I definitely won't be risking Mexican at Moes again!!!!!!

So I am now back onto the plain old boring absolutely gluten free no pre prepared crap until I get my intestines back under control again!!!! Hopefully my next entry will be a little more positive.

Kylie

Posted by Possum at 01:35 AM | Comments (0)

September 29, 2004

Someone posted a question to me earlier to ask if I knew that there was a link between Celiac disease and MALT lymphoma.

I do know that there is a link between the two and that most people who have auto immune diseases are also more prone to MALT. Well I have celiac as you all know and I also have Sjogrens syndrome and sarcoidosis. All three diseases are more prone to develop MALT lymphoma than healthy people so I guess that it was bound to happen for me. I did not find out until ten months after my diagnosis of Celiac that I also had MALToma and it was only through the testing for this that I found out about my other diseases.

My main incentive for trying to stick to a coeliac diet is so that I do not increase my chances of gastric MALT or of gastric lymphoma. I have already increased the chances a great deal because the celiac disease was left untreated for so long.

I have done really well this week as far as sticking to my diet goes. I am back to reading the labels on absolutely everything and if I am not sure then I just don't eat it. I do think that I will have to give up my hot chocolate in the mornings because the place that I get it does not have a gluten free one!!!! (better for the waist.)

My biggest piece of advise to anyone who is newly diagnosed with celiac disease is to read the labels on everything and never take someone else's word that products are gluten free because they may not be. If you don't do it right from the start it is hard to get on track and in the end the only person who really suffers is you!!!

Posted by Possum at 08:17 AM | Comments (0)