July 26, 2004
Fibromyalgia Basics.........and Diary re Flares
FMS FACTS: The word 'fibromyalgia' literally means: fibro (muscle/tissue) myalgia(inflammation) as the condition initially was believed to be inflammatory. However, it is not inflammatory. Fibromayalgia muscle pain is actually muscle tissue that has stiffened and has more tissue wrap around it to keep it stiff and protected from the pain that caused the stiffness to start with. Example, when I was writing a lot my shoulder then arm then hand would hurt so much that I would basically write from the wrist, learning to not move my shoulder because it hurt; in addition to ruining my handwriting, this allowed the stiffness in the muscles to get worse, and so on and so on. Yes keyboarding is the same so right now both of my shoulders are still and I'm typing using my forearms forward and my shoulders are still.
Because the muscle pain is not from inflammation, analgesics, like tylenol, advil, aspirin do not help with the chronic muscle pain. Instead mild muscle relaxors are rx'd for the day, Flexeril 10 mg 3x a day for me, and a stronger muscle relaxor at bedtime, Soma 350mg for me.
This is why it is very important for Fibromites (a commonly used term for folks with FMS) to include 'body work' in their health plans. Body work can mean stretching, massage, chiropractic, osteopathic manipulation, and just plain moving. Initially this can aggravate the condition, but movement and therapies to keep muscles mobile are essential.
Diary:
Like our other fibro-friends, today as every day, I awakened with my entire body stiff and in pain. When I say stiff and in pain, I mean I move like Tim Conway doing his little old man impressions. I can hardly move. I waddle to the bathroom, to the kitchen and swallow my a.m. meds: Paxil 40 mg(antidepressant for seratonin replacement), Ativan .5 mg(anti-anxiety), Flexeril 10mg(muscle relaxor) and vitamins if I remember them. It takes about an hour to 'thaw out', at which point I still hurt everywhere but more like a 5 on a pain scale of 10 than an 8 like when I awake. I explained my sleep disorder in my previous post. The sleep disorder which is an inherent part of FMS helps contribute to this a.m. pain and stiffness.
I learned early on to 'space and pace' : space activities apart and pace myself. This keeps me in the best condition possible. And do I overdo?? Yup!! My mother got an oak coffee table and two end tables of really good quality, aka heavy, at a thrift store for my 18 yr old Jen's apt. Yesterday Jen and I carried the big table together (she got to walk backward!!), then we each carried an end table. Of course we're carrying these from the apt. parking lot to her apt which is right in the middle from either parking access. Later yesterday, my neck started pinching pains, and my back started with sharp pains and all over chronic pain worse than usual. I do take a 100mg Vicodin only if and when my pain is really sharp and excessive, for me, one a day if any.
Because I overdid yesterday, today I am in a flare: I am weaker than usual, hurt more than usual, and am more fatigued than usual. But my baby girl needed help so....... As I say sometimes, I can have this disease flare on me for no reason or I can do something I need to do or want to do which = overdoing and pay later for a reason.So today I am paying for my behaviour yesterday, big time. My husband has occupational therapy for his stroke impaired arm/hand on Monday and Wednesday afternoons and I usually accompany him. Today I can't. That's another point, when someone with FMS says they "can't" they literally mean they cannot do whatever it is. Sometimes it's hard for friends and family to understand this, as we look fine. The picture on my page was taken at my daughters 18th birthday party and I was in a flare from preparations and going out for the party, but can you see it in my face? My husband, daughter and Mom can sometimes tell when I'm in a flare or mini-flare because they have a lot of experience with me and are privy to up close and personal access to my behaviors. Some folks see that I 'Look tired".......DUH. I'm very lucky that my closest supporters understand when I set limits and what they don't understand they believe of me.
Due to today's flare, this is the end of this post. I shouldn't have typed so much, but I am finding posting to be mentally and emotionally beneficial.
Hugs, Judy : )
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