April 19, 2005
Friends & Family after Fibromyalgia Strikes
Here is my angel girl. She has been the light of my life and continues to be. Of course she was also the bain of my existence at frequent intervals during ages 12-16.
My Jen, it may make me cry to write this, yup, ... she is proud of me today just like she was when I was the best business woman in the world (her view,,and I was damn good).....she understands how we think I got this disease and she supports me and still respects me. Now this is a greater level of both at 19 than at 15, still she never stopped respecting me...I've asked her about it.
Keeping friends when you get disabled?? Sorry, you're too inconvenient now, except for the lifelong best friends that live out of state by now and you stay in touch by email and Xmas cards alone.
Family....some understand, some don't,
Sister--some are jealous that I'm "sitting at home eating bon-bons while 'she' is working harder than anyone else in the world and I'm being paid with her tax dollars!"
BTW My main source of income is a private disability policy I paid for myself, the SSA disability is good too & BTW I'd worked 20 years by the time she had worked 3 and she's only a year younger than me.
Father--"If you can buy a house and move out and live with a man then you should be able to come back and run the office and work again" ... not... being able to have some resemblence of a personal life does not equal able to work.
My mother and my daughter have been my rocks along with my Faith and not in that order since 1/97. My dh Frank has been understanding and supportive for our 6 years together.
I'm gonna support myself now and go put my head down.
Hugs and Blessings, judy
Posted by on April 19, 2005 1:35 PM
Thank you for the nice comments on my first post Judy. (Parents' Fault) I'm enyoying reading your diary!
This is a great post on the reaction of friends and family to an illness. It's just so hard for people who feel fine to understand. We just have to hope we have a few people in our lives that love us and stand by us no matter what. I have that and it sounds like you do too. We're lucky!!
Posted by: Elizabeth at April 22, 2005 3:58 PM
Someone telling my story. I can relate soooo much to what you are going through. I too was very active and have had to grieve my old life to replace it with the new fibro life, What a life. I would like to know how you got your diary started. I too would like to start one
Posted by: Deborah at May 18, 2005 5:17 PM
Thanks gals,
Deborah, the main page has a link or something to email the editor, Tracy.....email her and she'll take you along from there.
Hugs, Judy
Posted by: judy at May 20, 2005 4:10 AM
Thanks Judy, I am just getting started on Paxil again after they tried to put me on a bunch of other drugs and got me all screwed up again. I was on Paxil for years and went off to detox and was using trazadone then that didn't work so I tried Lexapro and now I am going back on Trazadone. I don't thing the doc's get the idea when they mess with our medication it can put us on a rollercoaster or feelings, thoughts, pain, and other types of suffering. I am going to the Doc today and going to ask them about Cymbalta that I read about in your other post. If you could e-mail me at my address I would love to have a friend on the computer to talk to. debedo98@yahoo.com
Anyone else that reads this too and wants a computer friend feel free to e-mail me.
Thanks Deborah
Posted by: Deborah at May 20, 2005 3:33 PM