June 2, 2005
Space and Pace and go slow so can Travel
In one week, my boys and I fly to Maine for Frank's daughter's HS graduation and are spending 11 days there. So I will be away from here :(. When you pay so much to travel so far, you just have to stay a bit longer than usual (but 11 days!)
We are staying with his step-daughter, whom I adore, & her husband, Tom, & 3 kids. In a 3 bdroom trailer. Frank and I get the master bedroom so that each of us can take care of ourselves and rest as needed and be comfortable. It has a tv & bathroom. So when I do feel up to being with the kids (G-kids! Cloe 3, Austen 2, & Talia 7 mos) I just have to come out of the room, not drive 45 minutes from the motel. She's really looking forward to having us with them, she called especially to convinc me it would be okay. While I was having my med change torture, I became very anxious about going on the trip at all, and staying with them, and putting them out, ..... She said she and her husband are dedicated to doing everything possible to make us feel at home ... to include sleeping on the pull out sofa so we can have their room. They're putting Austen in with the girls, & Garrett will get Austen's room. I told her company for 11 days is gonna get old, giving up her bed, having to get around us to get to their stuff. yada, yada, is gonna get old. I told her I just didn't want to be a burden , didn't get into the anxiety and fear that Frank wanted her to call me to calm. Now that the med change is settling and grad FMS flares are halting, I think I can take care of a few matters that need care before we leave at a peaceful pace. So prior to arriving at the airport I plan to be in good shape! From there who knows these days while traveling, but I'll have my travel 'kit' and it will be fine.
Chrystal who is the graduate is at her sister's a lot as her bf(not my fave) is Tom's cousin so they both hang there. Chrystal lives the 40mins or so from Evie's. The little cute family owned motel we stayed at on our previous 2 visits is near Evies. (At one point I was so panicked that during my night prowling, I made a reservation for the entire time for my favorite room there...I wanted/ NEEDED familiar.)
We're hoping Chrystal will be there for our arrival 'round 8:30pm Tues. tho she has school for the whole week. Her graduation is on Sunday evening and then we're staying thru Fri. hope to get lots of good time with them, so got to take it easy now and while we are there.
I missed my counseling appt today because I hadn't slept since Thurs., and so I took an addl med and didn't respond to the alarm. I really had wanted to address these issues to feel better about it all, so I guess I've addressed it here instead. I get no time limit and this is free so maybe not all bad, but I really trust and like my counselor whom I've worked with for 8 years.
My Jen is gonna house sit to care for the dogs and get more taste of independence on the way to her 7/15 move into her own apartment. In exchange for her staying here, I've bought her living room end tables and coffee table (Walmart.com, gotta love it!) (Already buying the futon couch as a show of support for her move to independence--she found one she likes and put it on layaway). I think I'll have to recuperate from the trip in time to help assemble some furniture! We make a good team, Jen & I at putting stuff together so that'll work, as long as I bounce back. She had a wonderful 3 days in CA; she and her best friend stayed at Redondo Beach and loved the area; they also went to Magic Mountain for 6 hours and only 3 rides in that time; then the beach shops, then Venice Beach and home tonight. (Whew! Not that I was being overprotective and worrying...ha!)
OK to bed with me now in keeping with my 'take it easy now so I can enjoy the trip' policy.....
Hugs and Blessings, Judy :)
Posted by on June 2, 2005 1:29 AM
Hi Judy. My heart goes out to you. I hope your trip has been well managed. I am trying enzymes for CFS, and they started to help quickly. Not a full cure, but improvement. Here is the url that helped me.
http://www.enzymestuff.com/conditionautoimmune.htm
I think you can take them at the same time you're on meds.
Catherine
Posted by: Anonymous at June 18, 2005 5:39 AM
Judy,
Are you OK? I've checked for an update about your trip several times...
~Sabine
Posted by: Sabine at June 23, 2005 10:11 AM
Hi Judy:
It's the neurotin that is making you crazy. When I was taking it, I almost chewed my poor husband's head off because he said he wanted to eat barbeque.....I got off of the neurotin and never took it again! Good luck coping with fibromyalgia.....it's a curse.
Sarah C.
Posted by: sarah citron at February 4, 2006 3:42 PM