HI,
I read some of your notes and felt like I was reading about me. I"m also 42,have multifocal avn,have had numerous cd's, Right hip resufacing and I am currently dealing with a botched surgery on my wrist. I can relate to your good days and bad days. Days when you just want to be normal (and pay for it later). My husband is very supportive. He married me knowing all my health problems. The only thing he hates is doctors, so we are quite a pair. I think he hate's the false hope most of them dish out. I've been told by so many doctors they can fix it and the pain will go away, he see's this as not even remotely true.
I got avn from steriods, I have asthma and bad allergies, I'm in chronic pain all the time, I have GERD(from taking so many antiinflammatory's, and stress fx's from osteoporosis and prior to this I was a human being! There comes a point when you feel like a science experiment! I can relate not being able to do the things you used to do, I have a hard time with this one. I was a nurse for 20 yrs and do not like being the patient. When I rebell and decide I'm going to do some activity anyway. My husband gives me the reality of YOU know you can't do that, why do you even thing you may can. I think rebellion is natural. I am 42 trapped in a body of a 80yr old. It sucks!! Well good luck to you.