February 08, 2005
Same Old Thing
I haven't written in such a long time because I seem to keep repeating myself. I have been in constant pain for the last couple of months. I have been to two (2) new doctors and both have said I am too complicated for them and sent me on my way. I saw a pain specialist who seems to think that this is something that can be fixed with little to no meds.
Then last week I took a very bad fall on the ice landing on my replaced hip side. I had x-rays of the knee but they didn't x-ray the hip. I have been in horrible groin pain since. I am calling my family doctor today to see if we can get an x-ray of the hip.
It looks like I may have to travel outside my home state to see another Ortho. I am in contact with my insurance company now to see if this is possible. There are 3 good doctors in my state for AVN, but they all believe in the same treatment and that is repeated Core Decompressions. I have already had 7 and in my opinion each one is weakening an already dying bone.
On top of all of this I was just diagnosed with severe osteoporosis. I have started taking Forteo injections daily to help rebuild the bone. The pain I have been in is unreal.
I try to put on a happy face and not let on how bad it is but that is becoming harder and harder to do. I only sleep about 2 hours a night and that has been for the last 6 or so months. That is taking it's toll on me too. Sleeping pills don't work. Tthe pain outweighs them. I am still on the same pain meds I was on a year ago and my body has built up a tolerance to them so they are barely working.
I feel so lost and really need a good doctor, even if it mean starting from from the begining.
Posted by Karen on February 8, 2005 06:23 AM
Comments
Karen, I am sorry to hear you are still in such pain and in addition to your fall. :( YOu are not starting from the beginning, good grief no! :) There is plenty you have learned along the way , this I know! Have you seen a pain clinic/doctor? Maybe they could suggest some other alternatives? Please keep us informed as many people out here read your posts and wonder how you are doing. Hopefully you are on your way to some more answers here.
Hugs always, Star
Posted by: Star at February 12, 2005 11:33 AM
Hello:
I also have AVN(I like to use past tense because I am on my way to recovery). I developed AVN of the left femur due to congenital hip dysplasia.I suffered for years as the disease progressed. I went to the Beijing Special Hospital for Femur Head Necrosis in June for 10 days...within days the pain was gone and I slowly resumed some flexibility.I will be on crutches for about 2 years until I am healed.....when I arrived at the Hospital my femur was collapsed...my pelvis misaligned/dislocation and osteoarthritis.
You can check this website...www.femurhead.com or www.don't lose hope.
I was dealing with my condition for 8-10 years and I have an idea as to what you are going through.
Best wishes,
Sharon
Posted by: Sharon at August 15, 2005 12:02 PM
hello my name is dawn im 16 yrs old i have been diagnosed with avascular necrosis my surgeon says ill have to wit for hip replacements but this seems a bit harsh do anyone now any other methods of cureing this any information is deeply appriciated please email me on im_tlkin_2_u@hotmail.co.uk
Posted by: dawn at January 23, 2006 12:09 PM
medical marijuana
Posted by: andy at June 25, 2006 09:36 PM