March 06, 2005
Getting Excited
I am starting to get so excited about my trip to New York next week. You know it's bad when you get excited over seeing a doctor. All I keep saying to myself is I would not have won the appeal to see the doctor for it to be a bust. I have all my paperwork and films ready. Now all I need is for the 15th to get here.
My pain has really not let up at all. My Rhuematolagist has written a script for Avinza, a new medicine for me to try. He said it is a different form of morphine and it may help me more. I have been on the same strength of morphine for over a year and it is no longer helping at all. I am getting it filled tomorrow, so let's pray it helps. If it helps maybe I will be able to get some sleep. I forget what that is like. The pain is so bad at night that I don't think anything will help.
I just made our summer vacation reservations, and I want to be able to enjoy it this year.
I will keep you posted.
Posted by Karen at 08:27 PM | Comments (0)
March 23, 2005
No Luck in New York
My trip to New York was a bust. It was a very long day only to be very disappointed in the end.
We left Baltimore at 7 AM. We arrived in New York just about noon. After fighting traffic and being in pain my nerves were already shot. We found a parking building at the hospital, and found it was going to cost us $52.00 for 4 hours.
Once in the hospital they sent me right away to get x-rays. That was the quickest part of the day. I took them back to the doctor's office and then we waited about 3 1/2 hours to see the doctor. He looked at my films and said there is nothing anyone here can do for you.
Let me start by saying those doctors do not believe in Core Decompressions and because I have had so many they said my bones are SWISS CHEESE. After their explanation I understand what they are saying, but that doesn't help me now. My bones that are already dead are now even more frail from all the holes drilled in them. The doctor did say he would look at new MRI films and suggest what he thought may be my next step, but they wouldn't do it. He also said I might as well come to terms that I will always be on pain medicine. He said my AVN was bad but having Osteoporosis as bad as I do, only makes matters more complicated.
Needless to say by the time we left the hospital at 6 pm I had had it. It was rush hour in New York. I was upset and it wasn't a pleasant ride for my husband at all. I must say he is a real trooper and never complained once. He kept telling me we would find someone to help me. We arrived home a little after midnight and both dropped into bed.
Please think long and hard before having more than one Core Decompression. Ask the doctor what this will do to you if you do have to have replacements later down the road. If only I had known.
Well back to square one, I won't give up.
Posted by Karen at 04:22 AM | Comments (0)
