December 11, 2004
Falling about but not laughing
My balance is getting worse. It hasn't been very good since I had neurological problems back in 1998, but it's awful now. I nearly fell over at least three times, and one of those times I got my legs tangled up - literally. I also keep having to grab hold of things to keep my balance. I seem to be leaving my leg behind and dragging my foot quite a bit too. I've discovered that the amitriptyline could be affecting my balance, which sort of clouds the issue since I already had neurological symptoms. Added to the pale optic nerve and the slight numbness in my extremities I think it needs investigating, but as far as my doctor is concerned I've had the scans and lumbar puncture so that's that.
I had a scan last year which showed 'a thickening of the falx, possibly due to a small meningioma'. I found that out from reading my notes. My doctor just told me that I had a slightly thickened brain membrane and it was nothing to worry about. Wouldn't you worry? The other scans and the LP were done back in 1998, when they thought I might have Multiple Sclerosis. It bothers me that they don't seem inclined to discover what is the problem, having established that it's not MS. I can't really go private on this one as to have all the tests done privately would cost thousands of pounds, which I just don't have.
I have to say that all this isn't helping my quality of life though. I suppose I just have to wait until something goes very seriously (& obviously) wrong before anyone takes any notice of me. I feel like they think I'm malingering, but how do you fake a pale optic nerve and a thickened brain membrane?
Posted by anniebee | Filed under:
Comments
That really makes sense, that the med can be making things worse! I'm so sorry you're having such a hard time! *HUGS*
Posted by: Karen at December 11, 2004 07:28 AM
