March 9, 2006
Anti-body Treatment #2
It wasn't my worst fear realized, but my concern proved accurate. The boost to 75% of the experimental drug did cause some problems. It magnified the usual, breaking out extended to face, neck, scalp, and I started to get a little bit of a sore mouth and my sore throat that I thought was going away got to where everything I swallowed hurt. I give the doctor and clinic an A for response. I called them a week ahead of time and reported the problems and asked to reduce the drug back to 50%. I was surprised to get a call back informing me that we would drop the experimental drug at this treatment and start back at 50% from now on. Good news. So, on Tuesday I had a very short treatment with only one drug. Less than 2 hours instead of 6 hours. The clinic had a staff change, which surprised me. The Nurse Practioner left, although they said it was not unexpected. All the time I spend there it's almost like family, but the new NP, Barb, has been there before so it's not like a stranger there. I think I've resolved in my mind that my life will revolve around this clinic and CT scans the rest of my life. Not the most pleasant thought to carry around, but it keeps me alive and the other option we don't think about. I'm also not real excited about going back to work 4 nights a week. Unless the company insists, I plan on just doing the 2 nights a week. Guess that's about it for now. Good health to all.
March 22, 2006
Anti-body Treatment #3
The past couple of weeks have been pretty good for me for a change. With the experimental drug being withheld the last treatment I could definitely see the difference. The extreme breaking out was significately less. My sore throat and mouth were gone, taste buds almost normal, no more sinus draining. I actually felt like a normal person again. I think the chemo drugs have been flushed from my system now. No more cold sensitivity. Of course, all good things must come to an end. Yesterdays treatment had the experimental drug back at a 50% level. Last night my sinus drip was back. Today it's running pretty good. So what else? I'm ready to see this drug end soon or I would consider dropping it. I have gained 6 pounds this past month which is good. What's bad is where it is landing. With little outside activity yet, it seems to be landing in the middle. I've gone down one belt loop. Looking back, I've come a long way since that low of 139 pounds, a 30 pound gain. Two more treatments and another CT scan and then ???? I guess that's about it. Little to say is good news. Good health to all.