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April 10, 2008

Another Cat Scan

We've been at this "adventure" now for some 33 months. I lost track of how many cat scans I've had, but this was either 13 or 14. I always get concerned when scan time comes. Think the worst and hope for the best. I was really worried with this scan. I haven't felt good for several weeks and lost weight which has held stable for now. I just had a bad feeling. Here's the story. Cindi, the NP, came in the room and asked if I had seen the scan. I said no and just answer one question, what was the measurement of the largest liver spot. She said 5.5x5.3. I'm very careful with my language, but my reaction was to say sh**. When we started this mess it was only 4.2 x 3.4. This spot has the diameter of a tennis ball!!!! Of course, when the doctor came in he was not smiling and said we need to start chemotherapy right away. Asked what, he again said we would try the same "recipe" of chemicals as before. Since I have been off of them for 2 1/2 years they should work again and after a scan in 2 or 3 months if they're not working he would try something else. I asked if I had to have the 5RU and carry the damn bag for 2 days. The answer was yes, you'll have the "damn" bag for 2 days. Don't think he liked my damn. I asked to start with a lower dose so I wouldn't get sick and he just smiled going out the door and said it was up to Cindi to keep me well. That's the bad news. We start in 2 weeks. I hate having to do this during the summer, so much that needs to be done. At least the cold sensitive drug shouldn't be problem, except my iced tea. I guess the death door has opened a bit further. Too bad my home support is zero. I wish you all continued good health.

Posted by Robert at 12:52 AM

April 23, 2008

Chemotherapy Again

As the old Gene Autry song said, "I'm back in the saddle again", except my saddle is another round of chemo and with the same "recipe" of drugs, less the experimental drug. So we have oxaliplatin, the one that makes you cold sensitive; fluorouracil that has the 46 hour pump you have to carry with you; and promethazine for nausea, It will be interesting to see how I react to these the second time as far as getting sick and if they will be as effective as the first time. I am happy to say that after 24 hours I feel fine, but my first real test will be about Friday as the dose of anti-nausea IV wears off and I rely on pills. By then, I can drink my room temperature "ice" tea with ice. A couple of surprises, I did eat a normal supper last night and of all things as I think about getting sick I'm dealing with being constipated. Figure that out. I still try to remain positive about this, if that is possible, but with us starting this at a low dose that I could tolerate last time I can have some hope. I know I have to eat regularly and with it being summer this time, getting out of the house and getting some exercise. That's about all I can say right now and will give another report in a week to see how things all going. Until then, good health to everyone.

Posted by Robert at 1:38 PM

April 30, 2008

Chemo Update

I promised an update after one week of resuming my chemotherapy. First, I should mention that I neglected to include Avastin in the drug "recipe". Since it had stopped working, I thought we would substitute something else, but they said it had something to do with my blood and had to be in the mix. I am happy to say that I have had no, almost, side effects so far. I did have 3 days of constipation, but I'm not sure if the drugs were the cause since it's opposite of what should have happened. Being a "worry wart" of sorts, now I have to wonder if the drugs are really working. For one, it seems the cold sensitive drug is not making me cold sensitive. I made what could have been a mistake when I reached in the freezer and grabbed the ice cube tray not thinking, but I had no sensation. I was eating ice cream by Thursday night. Is that meaningful? I got along pretty good with the 46 hour bag. It wasn't until 10 minutes before getting it disconnected that I forgot it was on the floor and I got up and walked away. The sudden jerk on your chest is a quick reminder. I feel really good and will start working weekends again this week. I'll have questions next week for treatment #2, but not sure I'll get any answers. I did take an anti-nausea pill Thursday and Friday nights just in case, but don't believe they were ever needed. They do work great on clearing sinus problems. That's it. Nice to write something positive and I hope that trend will continue. Until next time, good health to all of you and don't bet too much on the Kentucky Derby.

Posted by Robert at 9:25 PM