May 12, 2009
What Do You Know About Hospice?
Hard to believe that this is the 66th entry I've made on this diary. But, the question of the day is about Hospice and as for me, I knew very little about them, just their basic mission. Well, I found out they are much more than I thought. They provide pain control, control of various symptoms, medication managemnet, personal care, counseling and spiritual care and bereavement services. After signing up with paperwork and more paperwork, the very next day a drug kit arrived from Fed Ex, which I don't need right now and is now stored in the bottom of the refrigerator for when I do need it. Then I had a nurse and a social worker call to set up a "get aquainted" meeting. That meeting also included a chaplain, all assigned to me for what ever the duration will be. I found the trio to be very professional with a desire to help me with my needs and maybe a bit frustrated that those needs are minimal right now. The nurse is pretty much all business, all the health stuff. The social worker is more into any problems other than health with questions like having a will and living will, choosing someone to give power of attorney to, is there someone to give the care you will need when things go bad and any "mental" type problems you might have. I can't imagine choosing this as a vocation, working closely with a person you are going to watch die. You's have to be pnetty dedicated and these ladies seem to be. I'd guess they may still be trying to figure me out, a little complicated. I too am still trying to pinpoint their personalities. Since it is a requirement to be seen every two weeks I think we're going to get to know each other very well. So far I look forward to these get togethers and enjoy talking and enjoy telling a few stories and sharing some of my writing. It is also comforting to know there is someone there if I am having any problems. So, that's the continuing story to date. I see them again tomorrow. Good health to all of you.
May 20, 2009
My Hospice Social Worker
I had a meeting with my Hospice social worker today, but first some good news. Last week my nurse prescribed an appetite stimulant/steroid pill for me. After 5 days of taking it, it kicked in. If eating a plate of french fries at midnight gives you a clue, it is working. Also spent an hour and a half outside without tiring as much which beats 20 or 30 minutes. For the record, the drug is Dexamenthasone 4mg. I guess it is a generic for Decadron.
As for today. I wanted this to be an "educational meeting". I figured she was still trying to figure me out and of course I was doing the same. I just told some stories of me and what was going on good and bad the past few days. She did get a kick out of a social work story I told her to show maybe how bad it was in the 60's. These social workers chewed out a woman for buying 2 half gallons of milk instead a gallon and how much more that cost the county. Then the other complained that a woman with an IQ of less than 70 would not iron her sheets. Really true. I'm not sure what the social worker has me pegged as. I'm sure she has an opinion. As for her. She is a good listener, of course she must be. She also is an all business person in the end. When the "fun" talk ends she is always pressing to see if I am thinking about decisions to be made in the future and to not wait to long to make them. I understand that, but am feeling good enough that I don't want to do that yet. I've added another what turns out to be something complicated, organ donation. Of course with the cancer there is a problem that may allow nothing. She is going to check on what I might be able to do. She also reminded me that my good mental health would probably extend my life and home conflict is not what I need.
I understand that. Guess she might think I am a procrastinator. Until next time, good health to all of you, and if it looks good, EAT IT!!!