September 13, 2004
New Neuro-Part 2
I really like my new neuro. He has ordered a sleep deprived EEG for tomorrow, which means I need to stay up all night and then have the test in the morning. Dr. Elsas Is a professor at OSU. He is doing a study about epilepsy and behavior modification so I may have a chance to be a part of that. I filled out all the questions and will know as soon as he gets the MRI back from my old neuro and the results of this EEG. I will keep everyone posted on how it goes.
Posted by Rose S. on September 13, 2004 03:18 PM
I am a senior nursing student, and I am researching what is like to live with epilepsy. I am giving a presentation on the daily issues presented with someone who has epilepsy. I would appreciate any information about how your daily life is affected. I am looking for how epilepsy conditions affect your relationships, work environment, family life, self esteem, and how you handle your day. I will be presenting to my nursing class so that they will understand the way epilepsy affects someone's life.
Thank you
MC
Posted by: Martha at April 9, 2005 11:27 AM
Hi Rose, I just found your site while searching around in Google. It looks like it's been a few months since your last post. Are you OK?
My wife also has epilepsy and we recently started a website (including a blog diary) on the subject. Please stop by and say hi.
Posted by: Coping with Epilepsy at April 28, 2005 11:14 AM
Hi...just saw your site and thought I'd let ya know its pretty good! I have had seizures (grand mal and absence) since I was 14 and am now thirty...I had gone 2 yrs seizure free on Topamax and a month ago had a seizure, wrecked my new minivan, and now can't drive AGAIN. Email me if you'd like....bstiedle@wlj.com....hope to hear from you....bethany ;-)
Posted by: Bethany at July 15, 2005 11:54 AM
Rose: do you know if you're in the study with Dr. Elsas? It's been a while since your last post. I'm waiting to hear if I'm accepted into the same study. Hope I am!
Posted by: Christina C at July 24, 2005 06:49 PM
As a matter of fact, I graduate this Thursday! I have only had 6 seizures since November when I started. It isn't an easy program but worth it if you can take control of your seizures. I am also hoping to become a volunteer epilepsy counselor.
Posted by: Rose at July 25, 2005 10:02 AM
Great site! You know, I also write epilepsy blog, you can check it out.
Jurica
Posted by: Jurica at February 3, 2006 01:03 PM
Rose,
Nice blog, appears your treatment went well. Good luck with that. I just got a VNS and am blogging about that and epilepsy in general. Feel free to stop by!
http:\\www.scott-lwe.blogspot.com
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Posted by: pet meds ordering at July 11, 2007 05:44 PM
Please can you help me. I am new to this. I am 25 years old and was just diagnosed with epilepsy. The doctor has me on so much medicine. 1600 mgs of Lamotrigine a day and 1600 mgs of tegretol. And 25 mgs of folicacid and 1 pill of klonopin. I am thowing up all the time. And my doctor tells me I am very diffcult patient. Is this what ever one has to take. Please help me. I am going crazy.
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