February 28, 2005

Fibromyalgia & pain medication

Hello. I have a question. How many people out here do not take pain medication for their pain? I have been told by many doctors that eventualy I will be off of my pain medication and will not need to take any pain medication "EVER".

I seem to feel different about this. The reasons are simple. 1) None of my doctors suffer from fibromyalgia. 2) Many doctors don't even believe that fibromyalgia is a real illness. They think it is all in my head. I have to battle the doctors every time I go. I have this one doctor (she will remain nameless ) who is very cold, hard, and mean to me. She does not want to give me pain medications and she believes all I have to do are these leg excercises and I will be better then new! She is my pain doctor and she is the one that prescribes me the medication that I take. She always underprescribes and dares me to ask her for more.

I feel that as a black women that needs to take pain medication everyone involved gets nervous: the doctors, the pharmacy. The nature of my illness' are "PAIN". I am not an addict. I am just someone who wants to be able to get up in the morning and make my daughter breakfast, take her to the park and run around. I want to be able to drive my car without being in pain, and most important I just want to be able to "feel alive" again. This illness has taken so much from me and I intend to "fight it". I will not take "NO" for an answer. So if you want to say I'm an "ADDICT" then yes, I'm an addict of a pain free life. I'm an addict of being able to play with my daughter, making a living for myself and daughter (right now I'm unable to work). Yes, I'm an addict of being whole again. That is what I want. I will beat this!

Please stay encouraged!
Talk to you soon.

Peace, love and happiness!

Posted by Keeon Williams on February 28, 2005 9:31 AM



I am sorry you are going through this-but let me tell you something-I am a white woman and they do not want to give me my pain meds either hon. I have lupus and yesterday wasdiagnosed with fibromyalgia and raynaurds syndrome so I understand where your coming from believe me-I am sorry you have to deal with it though-wish none of us did. If you ever need someone to talk to feel free to email me or visit my site.

Gentle Hugs,
Lisa

Posted by: Lisa at March 2, 2005 8:05 AM

Hey there, nice to meet you!
I was dx'd with FMS 3/97. I'd been having panic attacks, hadn't slept in years, was exhausted and in pain and agitated. As my docs rx'd meds, I'd always ask "is this addictive"...and usually the answer was 'Yes, but right now we have to get you better then we can worry about getting you off the meds'...if you check my journal here (My Life with..) you'll see I recently had to go off 50mg of Paxil to try a new drug Cymbalta. Not fun going off addictive stuff.
Because FMS is a tightening of muscles and then a limiting of motion to prevent pain, resulting in more muscle stiffness, Dr's rx muscle relaxors more than pain meds to start usually. I take flexeril 10mg 3x a day and 350mg Soma at bedtime with a load of other stuff. Over the 7 years I've suffered and been disabled with this (I was 35 when I had to stop working..info in my intro post), I have had pain meds in the form of: toradol injections, toradol pills, and most recently vicodin....because I know of the publicity of vicodin addictions, I only take 1 or 2 a day. The doc says I can take 2 up to 4x a day, but I usually need one around dinner time and one at bedtime. Sometimes when my symptoms are flaring, I have taken 2 in the afternoon, only a couple of times. So i could go without the vicodin and take ibuprofen and see what it would do..probably wouldn't be enough relief. I have had the best luck with rhuemy's and by the time I found my current doc I had 5 years of FMS expertise under my belt and I could tell she believed me and understood the disease and she prescribes what I need. Now, a psych that my ins co is making me see wants me to reduce the meds I take at night, he mentioned the Soma...no way Doc...brush up on my disease, then we'll talk about it. I get 10 mins with him of the 15 I pay for and he sometimes is not up to speed on the disease and where I am with it.
Yes, there is a good chance you can be off the pain meds forever....if you follow FMS recommended diet and exercise plans and take the calcium, magnesium & caltrate along with a good multivitamin. That is the maintenance treatment recommended by Dr. Teitelbaum in 'from fatigued to fantastic'...i had a really good year and a half where I was in less pain and had more energy then we had a few losses in the family and the diet went out the window as did the exercise and I haven't gotten back on track. I feel that when I start walking again, I have a treadmill, it will help the overall pain, it'll help me lose weight and build energy, like it did before...I've just been too depressed with this med change to do it, and it's been in my daughters' room since the 'losses' and that's my excuse for not doing it. (though I count a trip to Walmart as exercise!) My baby (19) is moving out into an apt in July so I'll set up the room to be exercise friendly. Great window, music and treadmill.
I'll also put my scrapbooking in there, but that's another story...
Oh and massages, chiropractors, d.o.'s specializing in manipulation, all can help with the pain, immensely. I'm currently seeing a holistic chiropractor and he has me pain free for a few hours except for my left hip that has something going on with it(?) and it hurts by the time we've driven home.
The hip pain is the main need for vicodin. The overall pain, I've gotten used to, but we shouldn't have to...
I've prattled on...
Hugs, Judy :)

Posted by: judy at May 20, 2005 3:11 AM

I could have written Keeon's post. The only difference is that I'm white. I know exactly what you are going through, Keeon. I wish I could find a doctor who understood the pain and need for pain meds. I think your description of "addicted to a life without pain" is the perfect way to describe how we feel. I don't want to become addicted to pain meds. I want to stop hurting long enough to find the next type of treatment or relief from this disabling disease/condition.

Posted by: Elizabeth at June 8, 2005 7:21 AM

I am a 25 yr old wife and mother of 4, I was currently diagnosed with fibromyalgia, and arthritis. The doctor I go to wont even give me pain killers because i could get addicted to them. duh. that may sound bad, but if you are in constant pain like i am you will do whatever it takes to take the pain away so that way you can live your life with out pain. I am going to change doctors to one that is will help me to take my pain away. I dont know i am new at this being in pain all the time and not being able to live my life the way i want to and get on the carpet and roll around with my kids. I just wish that the docs would understand what we have to go through. My doc thinks its a b.s diagnosis, but he is sticking with it. I dont understand. I am bound and determind to find someone to help me though and listen to me and think of my best interests as a patient.
Hope our docs finally get it one day.
Chantel

Posted by: CHANTEL at November 19, 2005 11:38 PM

Hi ladies,
I empathize with y*all. I was also diagnosed with FMS in '97 and its been a hellish ride. I gave up on the doctors years ago b/c I got tired of being treated like an addict. I wasn't depressed, just in pain. Well in today's society, if you're in pain you're depressed so you need an antidepressant. I had one doctor give me all kinds of drugs and tell me he was banking on the side effects. Needless to say I got tired of being a science experiment. If I need it I take Baclofen 3-4x @ day. Its a wonderful muscle relaxer with no groggy feeling the day after. They help me sleep at night and take the edge off. I prefer Vicodin b/c it makes me feel completely normal, but ....
Anyway life does get better. Feel free to e-mail me for some inspiration.
Lori

Posted by: Lori at March 1, 2006 6:52 PM

Hey! All of you that are depressed over the fact that Doctors are iddiots, it took me around 23 different Doctors (no joke) before I found one that was worth a shit.What I have realized is that you CAN NOT be totally honest with them, and this is a shame since they are there to help us. I just moved and had to go through the fun of having to find a new Pain Physician, over the course of seven Doctors I realized that they are judging me on everything in my life (lack of exercise, bad diet, no energy, etc), and they were litterely BLAMING me for having this disease instead of helping me. Once I started to tell them what they wanted to hear (yes I exercise, I do watch what I eat, no I don't suffer from lack of energy) then they were more likely to help me. I also (and this is going to sound stupid) got really dressed up, did my hair and make-up, to "appear" that I have my life in order, eventhough I am in alot of pain all day long, I can rarely get off the couch let alone do my make-up and hair, for some strange and twisted reason they wanted to help me more. I also don't tell them all of the medications that I am on, I have my Primary Care Physican perscribe most of it, and let the Pain Doc give me the strong stuff(Durgesic patches and loratab, which by the way work great. I do make sure that the pharmacy knows so they can cross reference averything so nothing weird happens. I can actually say that now I have a quality of life, where before I didn't even have a life and neither did my kids or husband. Stick to your guns and take control, if your don't like a Doctor, kick him to the curb, they are there to help us, not judge us because we have this disease that they are too ignorant to research to better serve their patients. Good luck, I'll be praying for all of you, my Fibro Friends!

Posted by: Sarah at December 13, 2006 9:39 PM

I also have fibromyalgia and two herniated disc, I went through four drs before I found one that believed in fibro and pain medication. One day I believe their will be a blood test that shows we have it and all drs will have to acknowledge it. I am currently on the fentanyl patch 75 mcl I have tried just about everything the side effect I have had with it is itching but no rash Strange, an all over itch not where patch is. The hardest part to me is my family dismissing what I have and not understanding why even going grocery shopping is hard on me.

Posted by: Roseylisa at December 29, 2006 7:23 AM

I have had fibromyalgia for about 20 years, the first 5 went undiagnosed...although I was constantly told it was just depression..or all in my head. On top of the fibro, I had 2 herneated discs..that also took years for a doctor to diagnose. I eventually had fusion surgery twice, and the discs are ok, but i live daily with arthritis in my lower back, fibromyalgia,and bursitis in my shoulder. I'm not here to whine, I am at a point however, that i don't want to live anymore...i've tried to hold down a job, impossible. I come home and cry myself to sleep every afternoon at 3 o'clock! It's no way to live. I recently lost my dad, and i'd rather be where he is. My daughter is at the e.r. right now and i couldn't go with her, that's how bad i feel...her father is with her. But it's not a good feeling, to not be able to do things for the ones you love, life should not be like this...

Posted by: Jackie at May 15, 2007 12:59 PM

I am a 27 yr old single mother of one who works the grave yard shift. I was diagnosed with Fibromyalgia when I was 21. When I was 14 I broke my back and pelvis and had a closed head injury in a car accident. Since then the pain has been present and unbarable at times. I used 800mg motrin like candy in middle school and highschool. Finally after years and years of pain when I was 21 i wanted answers. I got them on my own actually and presented them to my doctor, who then sent me to a rhumatologist. It was then when I felt some sort of relief that I was actually being believed, and it wasn't all in my head. Because of my pain history and over 10 broken bones throughout my life, it is thought that I have secondary fibromyalgia. Which makes sense. I was already on an antidepressant and thyroid meds. The doctor went straight to the Norco, flexeril, and ambien. I began taking them as directed. Since being in a domestic violence relationship for 2 plus years and having a child with the same man who abused me and eventually our daughter, my pain has increased almost doubled. This has increased my medication. My doctor actually tried me on a pain patch called fentenal. I found relief for about four days, then it only made me tired. It was my choice to discontinue this because I was sleeping all the time and couldn't keep my eyes open to even play with my daughter. Now six/seven years later I'm still taking the Norco 6-8 a day, robaxin 5/day, effexor 300mg/day, thyroid meds and kolonpin .5 mg 2x/day if needed. This regimin has helped out tremendously. However during a flare I tend to take more medication and run out sooner. My doctor doesn't like this obiviously. However I can barely walk at times, and playing with my 21month old daughter is becoming more difficult each day. I get a lecture each time I go see him(The Doctor). He even did a drug test on me. I was so offended. It obiviously came back clean. In my head I was thinking, "In your face". Clearly I proved myself ya know? Then he sent me to a psychiatrist. I was thinking, come on, give me a break would you. I have medicade so it was with Community Mental Health, I had to have a consult with a counsler before I could see an actual psychiatrist. After my interview with the counsler, she said she was sorry and couldn't diagnose me with anything except depression, which is not a standard to be sent to the head doctor. so I have proven myself to my doctor, however he still treates me the same way, like a drug addict. It makes me feel so shameful to want to be pain free. And not even that really, I feel shamful to want pain relief. In my opinion it is inhumane to refuse pain relief, narcotic or not to a person who has legitement pain, and a diagnosis. It would be like telling a cancer patient that we cant give you chemotherapy to help you beat cancer. Or telling them we cant give you medication to help with the pain chemo causes. I guess I just find it so frusterating ya know! No one asks for fibromyalgia, and I wouldn't wish it on my worst enemy, that is how bad my pain gets. So now I have moved away from a domestic violence situation and have to change doctors, I thought it was a good thing until I found out that literally no doctors in this county perscribe narcotic (I hate that word) pain medication. Because it is abused on the streets here aparently. so I am angry at the people who are ruining it for suffers of chronic pain now. I guess I just see it as one big circle. I have an appt with a new doctor and have medical records dating back to 1997 when I was 17 yrs old. So I pray that he will believe in Fibro and some sort of pain relief other than tylenol, because in my opinion this is a joke. Tylenol is also an anti-inflamatory, which we all know there is no inflamitation in fibro. Well I have babbled on, please if there is any adivce out there on how to verbalize myself to doctors and explaine my symptoms, I could use it. My mind goes blank when I sit down and talk to them. At any rate I have to tend to my baby.

Jamie

Posted by: Jamie at June 17, 2007 2:21 AM

Hi Ladies,diagnosed with Fibromyalgia in 2002. Saw my internist who sent me to a rheumatologst who told me to take 10 elavil at nite,then sent me to physical therapy for stretching exercises. Ok,back to my internist who is sympathetic,but meds like Vicodin, ambien, Darvocet are out of the question. I'm currently on effexor xr 150,75 mg elavil,and flexeril twice a day. All fine and good,until I have a flare. Took 1/2 tab of my husband's vicodin (he has prostate cancer),and that took the edge off my pain,just enough so I could function at a family wedding. I feel like a common criminal asking for vicodin. I can't take any NSAIDS such as advil or aleve because of Irritable bowel syndrome. Can't take ultram because it conflicts with my Effexor 150. I just want to know that I have a few pain pills on hand,so Iknow it's there when I need it. But,my internist still says no. I'd feel strange just walking into a new dr.'s office and demanding vicodin. Thanks for listening....I feel your pain. Katie

Posted by: katie at August 15, 2007 5:33 AM

Also,have any of you used these on-line pharmacies for pain meds? I'm afraid of being scammed.
It's damp and humid here today,and I'm in agony.
Gentle hugs,Katie

Posted by: katie at August 15, 2007 6:10 AM

I know what perscriptions work for the pain I have. I have already been diagnosed but Doctors just seem to have the attitude, that I should learn to deal with it? I cannot do what I need to do when I can barely walk. I need an on-line DR. WHO WILL PERSCRIBE THE MEDICATIONS I NEED AND REMEBER THEIR OATH THEY TOOK WHEN THEY BECAME DR.S. I ALSO NEED TO BE ABLE TO GET RX FILLED AND SHIPPED TO ME. dOES ANYONE KNOW WHAT SITE I NEED? PLEASE HELP!!!!!!!!!!!SARCOID ,FIBRO.,LUPUS,BEGINNING OF M.S. WHAT SHOULD I DO.

Posted by: JOY at October 22, 2007 2:09 PM

all you ladies need to do is go see a crooked doctor. U can find them by checkin out chiropractors and seeing which ones throw it out there that they know a pain doctor who will ask you for 170-175 cash upfront and write you a prescription for 30-120 pills of what you want. and a refill visit is 100 somethin bucks. the other way is to find the same thing in a pain doctor. you need a referrel but most docs do it, using your insurance does not help either, they dont want to have records of their business. the most popular and common pain killer are roxi's

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Well, ladies,... ive read all your stories, and, I find all this quite incredible. I'm but a 30 year old male, who "kind-of" suffers from secondary FM induced by a car accident about 5 years ago. Ive been on 10 mg percocet 3 X a day, with a side order of 60 Vicoprofen (7.5 mg Lortab w/IBU ) for almost 4 years, not including the 4 1mg Xanax. Am I an addict? most likely... do I care? not really, no. a few helpful hints: search for older docs, older doctors are FAR more likely to write narcotics than younger ones. ALWAYS try and look your best, no matter the pain, at least one day a month, try to let the doc know the pain meds arent going to your head, even IF they are. If they can visually tell you might in ANY way be "hungry" for narcotics, you won't get them.

Hope you all find some relief.

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Seems like we are all in the same boat. I know the feeling I am made to believe that becaues i take vicodin that is why i have worse pain. I had to sign a contract just to get perscription for pain. I guess im an addict of a pain free life too. I dont understand why after all the studies on fm doctors dont give the meds that help. Im glad i found this web page at least i know im not alone

Posted by: pam at March 2, 2008 1:06 PM

I have a 21 year old daughter who in 2003 was diagnosed with Fibro. For the past four years she has had an extremely bad flareup that no one can seem to manage. Her life has basically been put on hold because of the pain she feels every day. She is going to college full time and works part-time. There are so many things she no longer does because it hurts too much. She used to ride horses about 4 to 5 times a week. She no longer participates in any sports and she loved soccer. She does not sleep, has severe migraines, GERD, a rapid heat beat which is being control by Inderal. It does help. She has gone from one migraine a week to about one every 4-6 weeks.
She has tried so many different meds but nothing seems to work. Her last rhuemotologist put her on Tramadol. She has started out at 50 MG twice a day, but then you know what happens you need more and more. She was taking so much that in February she has a Gran Mal Seizure, and a second one the following day.She was hospitalized for 3 days. I think that had to be the scariest experience for me to see her seize the way she did. I am so grateful that I was there when she had the seizure.
They immediately stopped the tramadol and while she was in the hospital it was okay becuase of all the IV meds she had been given. The hospital sent her home with no meds for pain or anything to control the seizure. She has been seeing a very good neuro who specializes in migraines and his office also has a pain management section. So we're going this route now. Her doctor did put her on Lamictal for the seizures and Lyrica (50 MG 2 a day). Lamictal is also used for people who have bipolar. She has been in a much better mood. She has been on the Lyrica for four weeks now and no improvement at all. From what I understand is that she on a minimal dosage of the Lyrica and it really should be increased. She doesn't want to increase it. In fact, she doesn't want to take it anymore. She has very little faith in doctors right now. She is having some side effects, i.e. weight gain. I can tell you how upset she is about that one. No 21 year wants to put weight on. she is becoming extremely frustrated and so are her father and I. The pain managment section is going to start a therapy called Prolotherapy. It's a procedure where a sugar water solution is injected in the ligaments which causes the area to inflame and the body will send messages to repair itself. I have read alot on it and have spoken to quite a few doctors and have been told it does work. The additional problem is that she also has Hyper-Mobility Syndrome.

I know there is an answer out there somewhere, we just need to find it. As a mother I feel so helpless and I don't know what to do. The good thing is that we have a very good relationship.

If anyone has any advice, please let me know. I know i don't know how you feel as far as pain, but I certainly can try to understand.

Linda

Posted by: Linda at March 4, 2008 10:23 AM

I have a 21 year old daughter who in 2003 was diagnosed with Fibro. For the past four years she has had an extremely bad flareup that no one can seem to manage. Her life has basically been put on hold because of the pain she feels every day. She is going to college full time and works part-time. There are so many things she no longer does because it hurts too much. She used to ride horses about 4 to 5 times a week. She no longer participates in any sports and she loved soccer. She does not sleep, has severe migraines, GERD, a rapid heat beat which is being control by Inderal. It does help. She has gone from one migraine a week to about one every 4-6 weeks.
She has tried so many different meds but nothing seems to work. Her last rhuemotologist put her on Tramadol. She has started out at 50 MG twice a day, but then you know what happens you need more and more. She was taking so much that in February she has a Gran Mal Seizure, and a second one the following day.She was hospitalized for 3 days. I think that had to be the scariest experience for me to see her seize the way she did. I am so grateful that I was there when she had the seizure.
They immediately stopped the tramadol and while she was in the hospital it was okay becuase of all the IV meds she had been given. The hospital sent her home with no meds for pain or anything to control the seizure. She has been seeing a very good neuro who specializes in migraines and his office also has a pain management section. So we're going this route now. Her doctor did put her on Lamictal for the seizures and Lyrica (50 MG 2 a day). Lamictal is also used for people who have bipolar. She has been in a much better mood. She has been on the Lyrica for four weeks now and no improvement at all. From what I understand is that she on a minimal dosage of the Lyrica and it really should be increased. She doesn't want to increase it. In fact, she doesn't want to take it anymore. She has very little faith in doctors right now. She is having some side effects, i.e. weight gain. I can tell you how upset she is about that one. No 21 year wants to put weight on. she is becoming extremely frustrated and so are her father and I. The pain managment section is going to start a therapy called Prolotherapy. It's a procedure where a sugar water solution is injected in the ligaments which causes the area to inflame and the body will send messages to repair itself. I have read alot on it and have spoken to quite a few doctors and have been told it does work. The additional problem is that she also has Hyper-Mobility Syndrome.

I know there is an answer out there somewhere, we just need to find it. As a mother I feel so helpless and I don't know what to do. The good thing is that we have a very good relationship.

If anyone has any advice, please let me know. I know i don't know how you feel as far as pain, but I certainly can try to understand.

Linda

Posted by: Linda at March 4, 2008 10:23 AM

Life really isn't worth living like this is it guys? I am a mother of 4 and wife of one and my life is going to shit. They are still ruling everything out, but I seem to be the only person truly intent on finding out what the hell is wrong with me. FM was not the first thing I wanted to believe seeing as how there is no proof, no cure, and no treatment they want to give, but it fits perfectly. How Depressing? My life seems like it is over. Right now I am on no meds for the pain but it seems that you guys are all right about the antidepressants. I have tired prozac, paxil, zoloft, cymbalta, and wellbutrin. They all made me extremely ill. I am losing hope at this point. I can not live like this eery day for the rest of my life.

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Hi Everyone,

WOW! I just read everyone's posts. I have chronic pain as well and am in the ruling out process still right now.

I finally found a rheumatologist who I LOVE. He does NOT prescribe pain meds unfortuneltely. The Rheumatologist before him was a JERK! Oh I hates him, so insenative and cold, made me feel like I was crazy. THe new one diagnosed me with bilateral tendonitits and bursitis in both hips and shoulders and FM and is ruling out lupas and RA. I feel that I have FM, and Lupas, but I don't really know. I do experience as all of you do, the lack of understandig from most people in my life. THANKFULLY my husband gets it and he is one of the only ones. I don't even talk about it with people anymore, it's a waste of time and ends up being hurtful to me.
I do have an orthopedic dr. who does prescribe me Oxycodone 15mg but only to take 2 x per day and sometimes that isn't enough and I run out early which really stinks. I don't want to ask for more because I don't want him to start treating me liek an addict and so on and so on as all the other ones do.

I as well wonder about these phone consult or online dr.'s. I would appreciatye any info ferom anyone on that.

I feel you ladies and gents. I feel you!!! I am here for support if anyone needs it, email me. Thanks and go easy!!!

Posted by: Jenna at March 15, 2008 1:34 PM

I can definitely relate. Good luck to all of you. All I can say is keep looking for a GOOD doc. They ARE out there. I have fms and early onset OA. I put up with this shit for 20 years, getting increasingly worse, and ruining my stomach more and more on 2400mg of ibuprofen a day and flexerils most days (which did not control it adequately). No 'pain pills' at all. Finally I went under a different (decent) health insurance plan and was recommended to a pcp, who is very good and who was willing to actually listen to me, start ordering tests, etc. He worries about addiction too, but does prescribe me Vicodin and Cymbalta. I also found a rheumatologist who is great and doesn't care about what other docs think - she is all about results and she got me to try Tramadol, Robaxin, Neurontin, Relafen. I take small doses of Robaxin twice a day, small doses of vicodin most days, alternating that with Ultram just to vary things so as not to build up too much of a tolerance to one or the other. Also take 900mg of Neurontin (i am allergic to Lyrica) which helps to reduce night stiffness. I saw a neurologist along the way to see if she knew why i felt so bad and she suggested the muscle pains could be from sleep apnea and ordered a sleep study and it turns out i have severe sleep apnea. So using a CPAP at night and trying to get >=6 hrs of sleep a night helps me feel more rested and less fatigued all the time. Hope something of this helps.

Posted by: Pat K at April 11, 2008 7:50 AM

I can understand all of you.
I have Fibromyalgia and was wondering why doctors are not more wlling to prescribe narcotic pain medication to us since without it we basically have no life. I think doctors should start reading posts and comments on sites like these to get a better idea about how we as patients feel.
I hope that each of you find or have found (seeing this post is quit old) pain releife.

Posted by: Sabrina at April 12, 2008 10:26 PM

I have read all of your posts and can't believe that I am not alone in this!!! I have a wonderful family doctor with whom I am going to see today and he prescribes me Endocet 10/650. I am seeing him today and in fear that he will cut me off. I am not addicted to the "high" of percocets because I have been on them so long that I no longer get "high" from them.
But they do what they are prescribed to do..... Kill the pain!!! I think that I might have fibromyalgia because I suffer constant neck, back and shoulder spasms along with something that has started within the last 5 months. I wake up with intense cyatic (however you spell it) pain and have a great deal of trouble getting out of bed. Then I feel like somebody has snapped me in half from the lower back and down the right thigh and hip. The only thing that works and actually gets me going enough to get my kids off to school is taking half of one of my percocets (remember that I have to DRIVE). Unfortunately, there are so many mornings that I have been unable to get my kids to school due to the intense pain and inability to drive to the need to take the pain medicine. Now I am facing truancy court next week and just feel like a complete failure. They're probably going to take my two daughters (ages 13 and 15) away from me because of this. I am trying my best but I think that this illness is beating and defeating my whole livelihood! I am going to ask my doctor for Duragesic patches but am in fear that he will assume that I am an addict. I just want to stop hurting and be able to live my life productively. I haven't been able to work in 3 years and my husband is out of patience with me. We are drowning financially and he reminds me of it every day. I need to be able to work and be a better mother to my kids. Please help!!! Any advice out there. I am going to log back onto here when I return from the doctor's today. I see him at 2:15....... wish me luck. By the way, the people who said to look your best are right, and also the person who said to see the older doctors couldn't have said it any better! My doctor is 67 (but looking to retire next year.) Thank you for listening....... Jennifer

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By the way, I will be 40 in June (9 weeks from now).

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Hey everyone I so understand every one of you. I don't suffer from FM I suffer from migraines. Severe migraines that total criple me. I have two wonderful boys 3 and 10. I homeschool my ten year old and he does little league baseball so we're very busy. It's so hard throwing up and stabbing pains in my head and doctors are so oblivious to them. I stayed with a woman doctor for five years and truly liked her. I know she believed me because my husband had to almost carry me in her office one day and I felt as though I wasn't going to live. My blood pressure was sky high she then prescribed vicodin es. She told my husband to give me two and put me to bed,after that she prescribed them thirty every month. Sometimes I didn't use all of them but them sometimes I ran out. How is that my fault? So one day we were having a cook out having a great time and I got a migraine I went in the house and found a Lortab 10/650 from a previous surgury so I took it and within 45 minutes it was completely gone! I told my doctor and she refused to give them to me. So I changed doctors but my 2nd son still had her as a doctor. She called my new doctor and I don't know what she said but I started feeling weird vibes from the new doctor. So at my sons appointment I told her I would come back but I was so tired of the pain. She gave went ahead and gave me the Lortab and doubled it to sixty I didn't ask for that so I thought she really believed me.(she was a PA). This continued for about six months wonderfuly I felt good my migraines were taken care of and all was good. Then she married the doctor she worked with and I called in my meds one day and I was told I had to come in so I did with my husband. We only saw her husband and he said "we don't give pain meds for just headaches" I was hurt and felt as though he was treating me like an addict. I have never drank nor done drugs not even a cigerete. Three days later we received a letter stating they would no longer be our doctor and it's been two years and they won't release my records?Does anyone have a answer to maybe why or a thought as to why? My new doctor was very nice at the beginning and gave a small dose of vicodin that didn't work to well but I took it.In the mean time I have two abscess teeth and the pain is horrible and she won't give me any meds. She said go to a dentist which my husband worked in a coal mines and got hurt pretty bad and they cut our health insurance so we had to get a medical card and I can't find a oral surgeon that will take me. So I went back to the doctor and told her and her reply to me was to get a job and pay cash!She said have you seen the commercial about smack in your cabinets????? I have cried and cried what do I do? I've always worked but now I'm waiting for my three year old to go to school because I don't like daycare so much. And she said my kids went to daycare and their alright.Is it just me or did she sound mean and out of line? Well thank you for taking time for listening to my story and anyone has any advice please let me know.And for anyone having pain just give it to the LORD above!!!Oh and one more thing the first lady doctor I saw I called one day I was screaming with pain on my right side not knowing what it was I got in the tub and I called to get in she had me come in and took xrays her nurse said it sounds like your appendix. So the doctor came in and gave me a shot my husband asked what it was because she said it would help the pain and it didn't the nurse said no it's phenergren. The doctor came in and said your okay your having bladder spasms and sent me home. So the next two days I cried and tried to get through my daily duties and finally my mother took my to the ER and the doctor came in and said you have to have emergency surgury your appendix is about to burst!!!!

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