Diagnosed with Mesothelioma

On December 21st of 2001 we learned that my dad had Mesothelioma. My mother and I were stunned when Dr. Sean Grondin at Evanston Hospital informed us that my father would be dead within 3-6 months. My father was 68 years old and had never been sick. He was active and healthy. He played tennis a few times a week and took long walks. For a few months prior to the diagnosis he had been to the doctor complaining about shortness of breath. He never had any pain. Although my mom kept telling the doctors that his heart appeared to be beating very hard, they did not see what she saw. She would watch it through his shirt and it was very irregular.

In November they drained 2 liters of fluid from his lung. This was after a chest x-ray showed fluid. About 2 weeks later they drained 2 more liters. They thought he might have pneumonia or pleurisy or possibly tuberculosis. They performed a biopsy when the fluid reappeared. On Dec. 21st we all learned a new word...Mesothelioma.

Very few of our non-medical friends ever heard of this disease. Fortunately, doctor friends of my sister-in-law recommended a brilliant surgeon, Dr. Harvey Pass in Detroit, MI. In January 2002 we drove off to Detroit for the radical surgery. My dad had the extrapleural pneumenectomy--his right lung, right pleura, 50% of his pericardium and 80% of his diaphragm were removed. He did not have a single complication resulting from his surgery. He was walking around his room 2 days later. WIthin weeks he was off all pain killers. He was driving within 30 days. We will forever be grateful for the surgical skills of Dr. Pass.

We decided to remain with Dr. Pass for a clinical trial of a copper chelate. The theory was to starve the tumor of red blood. My dad went to his doctor for weekly blood tests and the blood was fed-exed to Dr. Pass. They would increase or decrease the meds depending on the levels. We went to Detroit once a month to be seen by Dr. Pass and every 3 months he got a CT. He was becoming almost anemic as they cut off the tumors food supply. He was fatigued, but still able to live life. It was not near the levels of fatigue of typical chemo drugs--which we were to discover later. He golfed a few times that summer. He enjoyed happy times with family and friends. He and my mom celebrated their 40th wedding anniversary.

By August the tumor returned. It was poking out at the site of the incision from the biopsy. It was purple like an eggplant and very sore. By the end of the month he was taking pain killers to dull the pain. Dr. Pass made arrangements fo us to go to the University of Chicago-Dr. Hedy Kindler-for chemotherapy.

BY the end of Sept. 2002 he started on a chemo trial. He was on cisplatin, gemzar and the trial drug bevacizumab. We went every week for 3 weeks and the fourth week he was off. He tolerated the chemo very well. He was able to force himself to eat. He claimed he had no appetite. Thanks to my mom's wonderful cooking and tireless devotion, he never lost any weight to speak of. He was tired--very tired, but he did not have constipation or nausea that other patients reported.

By the end of the first cycle of treatment (3 week cycle) he was off the pain meds. Really after the first treatment we saw the tumor shrinking and not so purple.

We were off to a good start.

The Nightmare of Mesothelioma

Diagnosed with Mesothelioma