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<title>The Nightmare of Mesothelioma</title>
<link>http://www.healthdiaries.com/mesothelioma/nightmare/</link>
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<copyright>Copyright 2006</copyright>
<lastBuildDate>Tue, 27 Jul 2004 11:18:24 -0800</lastBuildDate>
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<title>Diagnosed with Mesothelioma</title>
<description><![CDATA[<p>On December 21st of 2001 we learned that my dad had Mesothelioma.&nbsp; My mother and I were stunned when  Dr. Sean Grondin at Evanston Hospital&nbsp;informed us that my father&nbsp;would be dead within&nbsp;3-6 months.&nbsp; My father was 68 years old and had never&nbsp;been sick.&nbsp; He was active and healthy.&nbsp; He played tennis a few times a week and took long walks.&nbsp; For a few months prior to the diagnosis he had been to the doctor complaining about shortness of breath.&nbsp; He never had any pain.&nbsp; Although my mom kept telling the doctors that his heart appeared to&nbsp;be beating very hard, they did not see what she&nbsp;saw.&nbsp; She would watch it through his shirt and it was very irregular.&nbsp;&nbsp</p>

<p>In November they drained 2 liters of fluid from his lung.&nbsp; This was after a chest x-ray showed fluid.&nbsp; About 2 weeks later they drained 2 more liters.&nbsp; They thought he might have pneumonia or pleurisy or possibly tuberculosis.&nbsp; They performed a biopsy when the fluid reappeared.&nbsp; On Dec. 21st we all learned a new word...Mesothelioma.&nbsp; </p>

<p>Very few of our non-medical friends ever heard of this disease.&nbsp; Fortunately, doctor friends of&nbsp;&nbsp;my sister-in-law recommended a brilliant surgeon, Dr. Harvey Pass in Detroit, MI.&nbsp; In January 2002 we drove off to Detroit for the radical surgery.&nbsp; My dad had the extrapleural pneumenectomy--his right lung, right pleura, 50% of his pericardium and 80% of his diaphragm&nbsp; were removed.&nbsp; He did not have a single complication resulting from his surgery.&nbsp; He was walking around his room 2 days later. WIthin weeks he was off all pain killers.&nbsp; He was driving within 30 days.&nbsp; We will forever be grateful for the surgical skills of &nbsp;Dr. Pass.</p>

<p>We decided to remain with Dr. Pass for a clinical trial of a copper chelate.&nbsp; The theory was to starve the tumor of red blood.&nbsp; My dad went to his&nbsp; doctor for weekly blood tests and the blood was fed-exed to Dr. Pass.&nbsp; They would increase or decrease the meds depending on the levels.&nbsp;We went to Detroit once a month to be seen by Dr. Pass and&nbsp;every 3 months he got a CT.&nbsp; &nbsp;He was becoming almost anemic as they cut off the tumors food supply.&nbsp; He was fatigued, but still able to live&nbsp; life.&nbsp;It was not near the levels of fatigue of typical chemo drugs--which we were to discover later.&nbsp; &nbsp;He golfed a few times that summer.&nbsp; He enjoyed happy times with family and friends.&nbsp; He and my mom celebrated their 40th wedding anniversary.&nbsp;</p>

<p>By August the tumor returned.&nbsp; It was poking out at the site of the incision from the biopsy.&nbsp; It was purple like an eggplant and very sore.&nbsp; By the end of the month he was taking pain killers to dull the pain.&nbsp; Dr. Pass made arrangements fo us to go to the University of Chicago-Dr. Hedy Kindler-for chemotherapy.&nbsp; </p>

<p>BY the end of Sept. 2002 he started on a chemo trial.&nbsp; He was on cisplatin, gemzar and the trial drug bevacizumab.&nbsp; We went every week for 3 weeks and the fourth week he was off.&nbsp; He tolerated the chemo very well.&nbsp; He was able to force himself to eat.&nbsp; He claimed he had no appetite.&nbsp; Thanks to my mom's wonderful cooking and tireless devotion, he never lost any weight to speak of.&nbsp; He was tired--very tired, but he did not have constipation or nausea that other patients reported.&nbsp; </p>

<p>By the end of the first&nbsp;cycle of treatment (3 week cycle) he was off the pain meds.&nbsp; Really after the first treatment we saw the tumor shrinking and not so purple.</p>

<p>We were off to a good start.</p>]]></description>
<link>http://www.healthdiaries.com/mesothelioma/nightmare/archives/2004/07/diagnosed_with_mesothelioma.html</link>
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<pubDate>Tue, 27 Jul 2004 11:18:24 -0800</pubDate>
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