June 17, 2007
PD, Body Size and putting ourselves out there
I was reading on the Young Onset Parkinson's Association message board and came across this post:
Please forgive me but I am single and I have to ask this question. Did anyone else out there have the experience of thinking that someone was going to ask you for a date then you told them upfront about the PD and they took off never to be heard from again? I am large-sized but to be large-sized with PD means that no one seems to want to date you. I am getting very discouraged.
Something about it struck me and I decided i wanted to reply to it. I started writing and it just got longer and longer untill I thought it was really too long to post in a public forum. So I put it here and will link from the forum to this post in the attempt to save room on the forum. My response is below. Writing it helped me to process my thoughts. I am truly just learning too.
Hi Paula
your post gave me pause and I wanted to respond
with a few thoughts from a fellow person with PD
who is also , as you say, "plus sized". I am not
responding because I have "the answer", but because
I trying to figure things out just like we all are.
I think it's very easy, with PD, to feel somewhat
embarrassed by our bodies quirks. We move a little
differently at times, we have tremors, maybe walk
with a limp, you know, many things that we can look
at and think that people are looking at us, talking
about us, laughing at us. As large people we can
already relate to those kinds of feelings, perhaps the
PD just adds to the self-consciousness.
So we brace ourselves, we live our lives in a seige
mentality, huddled inside ourselves to protect against
the potential pain of the people who look, judge ,
point and laugh.
Yeah, mean folks are out there. No doubt about that.
But I have discovered in life that if I live in shame
(of my body size, PD, or whatever) I make it real
obvious to those around me that I accept the role of
victim. I do this by body language, eye contact (or
lack of), the way I speak (or if I speak) and on and
on. This very weakness, like in the animal world,
culls you from the herd, marks you as an easy target
and it will manifest negative responses from the
"mean people" out there.
But.. in acceptance of myself, and it is a hard, hard
process to achieve and harder yet to maintain, I find
that I reflect out that I am okay as I am. I accept me
today. There is always room for improvement to be
sure, but today I am here, I am this way, I am a
large person and I have a neurological disorder that
I am dealing with.
When we can accept ourselves, we draw those who
also can accept us. It's almost a magnetism concept,
isnt it? We can draw or repel by how we accept or
reject our own selves. The outside reflects the inside.
I once heard Leo Buscaglia say something that really
stuck with me. He was talking about a plus-sized
woman who was having trouble finding dates and
friends. The advice given to her was to find ways to
celebrate the very things that you reject about
yourself. Okay, she didn't like her thighs and hips,
but she began lightening up on herself about them,
stopped apologizing to herself and others about them.
She began to celebrate them, laugh about them,
make them something she talked about in her
flirtations. Instead of hiding them, she had the joyful
audacity to present it as one of her "selling points".
And, do you know, in doing that she found men
willing to celebrate her hips and thighs with her. She
found men who were drawn by the strength she
demonstrated despite not being the kind of woman
you'd see on a fashion magazine.
So here we are, we have this information, now what
do we do with it? Is it worth experimenting with to
see if it works in your life?
So think of ways to celebrate your Parkinson's and
celebrate your size. How can we make these things
into selling points? To use a basic analogy, let's turn
the lemons into lemonade. Then we will draw those
who may not care much for sour tart lemons, but
they sure would enjoy a nice cool glass of lemonade.
How we do that is individual, we each need to work
with ourselves to see what clicks. But I'll share a
few suggestions in closing as nudges in the right
direction.
1) Make a lighthearted list of 20 good things about
having PD. Get absurd with it, get jokey about it.
My list contains such silliness as "In an emergency,
you'll never be called on to perform emergency brain
surgery, so no pressure there", "You can play one
hell of a game of Yahtzee", "You can thread sewing
machine needles without having to stop the machine"
and on and on. You are developing a silly, light
attitude about PD, that is your goal. When you have
this list, you will have tons of emotional backup when
you are in public and drop things or shake. You can
fall back on an item from your list and say "It's just
Parkinson's.. it's okay.. you should have seen me
conducting the Boston Symphony, I wore them out!".
Lightness and a return to balance. If you laugh about it from a safe place like that, it lightens up the feelings of uncomfortableness folks sometimes experience around someone with a physical challenge.
2) Ponder the saying "Those who mind don't matter and those who matter don't mind". Lots of wisdom there in dealing with reactions to both your size and your PD. Those who truly are worth your time are the ones who will take the time and effort to get beyond such minor things as a tremor in your hand or your body type. Bodies grow and get smaller, our PD symptoms have good days and bad, but our core remains. Those willing to get to these essential parts of us are the ones you can be assured it is worth investing yourself in.
3) ....
I will leave this last one blank as I want you to go off on your own fork in the road and see where this takes you.
Thanks for reading and I hope this helps.
Posted by Lalo on June 17, 2007 3:17 AM
Hey Lalo, I am not sure if u read this or not, since this one blog u wrote was in 2007. You are really an inspirational person. I am actually working on research for Parkinson specially young onset parkinson, and would need some of ur input if u get this message n can contact me at billsheikhs@yahoo.com, that would be awesome thanks
Posted by: Faiz at December 19, 2008 1:13 PM