Main » August 2004

August 24, 2004


Well it's been one of those weeks. Between my fiance having seizures and my son's friend having to go to the ER today, I really don't need any more stress. Stress is a seizure trigger and I need to keep away from that. I have to take my medication yet so that I don't have one. I also need to get some more rest. I have been up most of the night watching and taking care of Michael.

Posted by Rose S. at 6:47 AM

August 22, 2004

Talking About Seizures

Last night I had a discussion about seizures among other things with Michael. He is newly diagnosed with recurrent seizure disorder and was saying how frightening they were for him. I told him that I knew it sounded simple coming from me but that he has to keep reminding himself every day that they are just a part of his life. If he follows the regimen that he has to, like taking his medication, eating balanced diets, taking breaks from the computer and not spending hours at a time on it, working on maintaining a low stress environment, and just basically keeping away from all the normal triggers, he will be fine. That sounds easy coming from someone who has been dealing with seizures for the better part of her adult life. Now if only I could talk myself into following this in another area of my life!

Posted by Rose S. at 10:40 AM | Comments (1)

August 13, 2004

A Long Drive

Today I have a long ride ahead of to go pick up Patrick for a week. It is supposed to be hot out so I better take my meds and some water so that I don't get over heated. I have to refill my script and pick it up on Saturday. Oh well....I really hate having to carry the whole jar of pills with me everywhere I go.

Posted by Rose S. at 6:13 AM

August 12, 2004

A Seizure Kind Of Day

The heat has been unbearable. It's been a seizure kind of day for the last couple weeks. Excessive heat is a trigger for me so I have one of two options. I can either stay inside (which is good for my agoraphobia) or grin and bear it and try to go outside. Maybe Michael will take me for a drive when he gets home. I hate having to have him chauffeur me around. I wish I could drive again but the frequency of my seizures won't allow me to get my driver's license.

Posted by Rose S. at 11:28 AM

August 7, 2004

Meds, Meds, Meds

Just took my morning meds. I take 1000 mgs of Tegretol a day to keep from having seizures. Not that it helps any. I still have them. I can't wait till I go to OHSU in September to be evaluated again. On top of the Tegretol, I take meds for agoraphobia, high blood pressure, and pain meds for RA of the cervical spine, (the docs tell me that it is at stage 5 and will never go into remission....but that is another story). I have to keep a sense of humor somehow about this. I have been dealing with this for 30 years but sometimes it gets so darned depressing! The meds either make me sleepy, psychotic, or with so low a libido I am surprised my fiance hasn't dumped me by now........

Posted by Rose S. at 9:46 AM

August 6, 2004

Another Seizure

Had another seizure today...this is the third one in as many weeks.....ARGHHHHHH I hate this.

Posted by Rose S. at 6:53 PM