September 13, 2004

New Neuro-Part 2

I really like my new neuro. He has ordered a sleep deprived EEG for tomorrow, which means I need to stay up all night and then have the test in the morning. Dr. Elsas Is a professor at OSU. He is doing a study about epilepsy and behavior modification so I may have a chance to be a part of that. I filled out all the questions and will know as soon as he gets the MRI back from my old neuro and the results of this EEG. I will keep everyone posted on how it goes.

Posted by Rose S. on September 13, 2004 3:18 PM

I am a senior nursing student, and I am researching what is like to live with epilepsy. I am giving a presentation on the daily issues presented with someone who has epilepsy. I would appreciate any information about how your daily life is affected. I am looking for how epilepsy conditions affect your relationships, work environment, family life, self esteem, and how you handle your day. I will be presenting to my nursing class so that they will understand the way epilepsy affects someone's life.
Thank you

Posted by: Martha at April 9, 2005 11:27 AM

Hi Rose, I just found your site while searching around in Google. It looks like it's been a few months since your last post. Are you OK?

My wife also has epilepsy and we recently started a website (including a blog diary) on the subject. Please stop by and say hi.

Posted by: Coping with Epilepsy at April 28, 2005 11:14 AM

Hi...just saw your site and thought I'd let ya know its pretty good! I have had seizures (grand mal and absence) since I was 14 and am now thirty...I had gone 2 yrs seizure free on Topamax and a month ago had a seizure, wrecked my new minivan, and now can't drive AGAIN. Email me if you'd to hear from you....bethany ;-)

Posted by: Bethany at July 15, 2005 11:54 AM

Rose: do you know if you're in the study with Dr. Elsas? It's been a while since your last post. I'm waiting to hear if I'm accepted into the same study. Hope I am!

Posted by: Christina C at July 24, 2005 6:49 PM

As a matter of fact, I graduate this Thursday! I have only had 6 seizures since November when I started. It isn't an easy program but worth it if you can take control of your seizures. I am also hoping to become a volunteer epilepsy counselor.

Posted by: Rose at July 25, 2005 10:02 AM